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School of Architecture & Community Development

Buratto, Giulia. "Designing Homes of Care: A Participatory Design Framework for Adults with Severe Autism and Their Caregivers."

This thesis investigates the development of an engagement process between architects and caregivers to inform residential design decisions. While existing research in environmental design and autism-focused architecture acknowledges the impact of the built environment on well-being, current frameworks often overlook the lived expertise of caregivers and the relational dynamics between caregiver and care recipient. This study addresses that gap by asking how architectural processes can better integrate caregiver knowledge. It also asks how engagement strategies can translate complex behavioral, sensory, and emotional needs into spatial design decisions.

Using a mixed-method approach including caregiver shadowing with photo documentation, survey analysis, and thematic synthesis, this research identifies key temporal, spatial, emotional, and behavioral patterns that shape daily experiences. Findings reveal that caregiving is highly dependent on spatial organization. Findings also show that stress is concentrated in transitional zones and in environments lacking sensory control or adaptability. Additionally, caregivers report a lack of representation in design processes and a need for more collaborative, informed engagement with designers.

In response, this thesis proposes a structured engagement framework that positions caregivers as active participants in the design process, bridging the gap between lived experience and architectural practice. The research advances a more inclusive and responsive design methodology, with potential implications not only for autism-specific housing but for broader care-based residential environments.

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